A short while ago we were contacted by the Transverse Myelitis Society to see if we would be interested in advertising in their magazine and bringing chairs along to their AGM on Saturday 16th April.
Whilst TM is a condition we are aware of, we have to own up to not knowing much about, it or the affects it has on people, so this seemed like an ideal opportunity to learn more, and of course to show off the funky, 3 wheeled, state of the art and all terrain Trekinetic chairs.
The venue, The Novotel at Heathrow, was nice and accessible and local…..well for me at least …and we were immediately welcomed by Danielle and her colleague Annie who, as Magazine Editor, was delighted to show us our advert in their magazine. We thought it looked fantastic and were delighted………would love to know your thoughts on it, and any suggestions you have that might improve it, are always gratefully received. To view our advert on line, visit The Magazine, Spring 2016 edition from Transverse Myelitis Society.
Having been to many an exhibition and AGM, I have to say the organisation was outstanding. There were workshops to suit everyone from Mindfulness and Depression Management to Bladder & Bowel Management and Lifting Your Spirits, to name but a few. During the coffee and lunch break (where the food was exceptionally yummie and plentiful) we had the opportunity to speak to many people who suffer from TM.
The first thing that struck us was the variable nature of the illness. Depending on where the spinal cord is affected, the severity of the damage to the myelin and the neurons in the spinal cord will determine the symptoms. For some they are relatively minor, (although not of course to the sufferer!) numbness, pins & needles, sensitivity, whilst others experience muscle weakness, paralysis, fatigue, neuropathic pain and bladder & bowel dysfunction.
There was a great deal of curiosity shown in our Trekinetic wheelchairs, not least of all for the ability to put the powered GTE in almost any car (most powered wheelchairs weigh over 100kg so can’t be lifted) but what was of particular interest was the rear shock absorber and Mountain Bike Tyres which together, result in a smooth and comfortable ride even over rough terrain. This understandably, was of great interest to those who experience sensitivity, as was the ability to recline the seat which enables the user to change position and adjust their weight distribution and pressure. Others were particularly taken with how funky and modern the chairs looked, and how maneuverable and versatile they are.
There were several others exhibiting alongside us including Birkdale, a Neuro Rehabilitation Centre and The Back Up Trust, as well as the opportunity to seek help and understanding of the various disability grants and funding.
The Transverse Myelitis Society is a small charity that does a wonderful job providing support, help and information for those in need. The day ran like clockwork so we would like to congratulate Cindy and the team for putting on such a great day.
And finally, a hearty ‘well done’ to Mark Ramsey who ran his first marathon, ever, on behalf of the TMS.
Have a wonderful, happy and pain free year,
Michelle & Viv x